Beth Potter, PhD (she/her/elle)

Principal investigator

Methodologist

University of Ottawa

Pranesh Chakraborty, MD

Co-principal investigator, PKU lead

Clinician researcher

Children’s Hospital of Eastern Ontario

Maureen Smith, M.Ed (she/her/elle)

Co-principal investigator, Patient engagement co-lead

Patient partner

Canadian Organization for Rare Disorders

Ariella Binik, PhD (she/her/elle)

Co-principal investigator, Research ethics lead

Methodologist

McMaster University

Jeff Round, PhD (he/him)

Co-principal investigator, Health economics and policy lead

Policy partner and Methodologist

Institute of Health Economics, University of Alberta

Michal Inbar-Feigenberg, MD (she/her)

Co-principal investigator, MPS lead

Clinician researcher

The Hospital for Sick Children

John Mitchell, MD

Co-principal investigator, MPS lead

Clinician researcher

McGill University Health Centre

Martin Offringa, MD, PhD

Co-principal investigator, Trial methods lead

Clinician researcher and Methodologist

The Hospital for Sick Children

Maryam Oskoui, MD

Co-principal investigator, SMA lead

Clinician researcher and Methodologist

McGill University Health Centre

Sylvia Stockler-Ipsiroglu, MD, PhD, MBA

Co-principal investigator, PKU lead

Clinician researcher

BC Children’s Hospital